19
Dec
11

4 days post…

More new sounds:

  • Heard the rain on the roof at my daughter’s pitching lesson;
  • At same pitching lesson, I could hear the pop of the ball hitting glove;
  • Heard the house phone ring from BEHIND me…although it was a black/white shrill sound;
  • I didn’t know that the clicking the main button on Blackberry made a clicking sound when clicked…until now;

 

That’s it for now…at least what I noticed/remembered.  Stay tuned…

17
Dec
11

And it’s on…

Sorry for not replying sooner.  It was overwhelming and underwhelming, if that makes sense.  Keeping my expectations low did not happen, and I was disappointed in the activation.  However, I keep turning over new leaves almost every hour…but by end of day, I am tired (okay, it’s only been 48 hours LOL).

I have sounds going through a Darth Vader simulator…all sounds.  But I do hear things.  It’s all black and white though…very flat and undefined.  I am starting to identify sounds…just need to remember them.   Since Thursday, I have heard the following:

  •  knife grating the cutting board while slicing bell peppers
  • barefeet slapping the kitchen floor
  • flips of the light switch
  • creaking of my husband’s office chair from across the room
  • tapping of keys on keyboard
  • slapping of water against hands while washing hands (today)
  • sizzling of ham while making breakfast (today)
  • can hear the cycle of washing machine while in kitchen
  • beats/rhythm of music (no color though…it’s all black/white)
  • sound of water hitting dog food bowl
  • sound of dog drinking water
  • the slapping sound when shaking out clothes to fold
  • oscillating fan when it moves from side to side
  • the click of flipping the signal indicator handle in car

I will post new sounds heard as often as I can…hopefully at least on an every other day or weekly basis.

I did do my first Clix (The Listening Room on Hearing Journey) assignment this morning, I did really well with the very first basic test, but it was almost obvious what the answer was (one square would be “Puh puh puh” and the other was “ooooooo”, easy to distinguish breaks in sound vs one lone sound LOL).  Plan on doing at least 3-4 more today over and over…after we go shopping. LOL.  I’d say the hardest thing is not turning my hearing aid on.  I have not had it on since I put on my processor 3 hours ago. 

Oh, I guess I should talk about the audiologist.  He is of mind to take baby steps, and right now I am on the HiRes 90.  He wants me to acclimate to sounds as is now, and plans on adding “color” aka Fidelity 120 on Thursday IF I am able to discriminate some sounds.  So I am working hard at “what’s that sound?”   I hope to make progress, and I keep telling myself it will only get better.  Right now the only thing I am most bothered by is the soreness of my ear.  I still have a stupid stuck stitch, and I loathe the idea of having to go back to the doctor to have it looked at again. But it looks like I will need to call them on Monday as it is not feeling better.

That’s it in a nutshell.  Again, I’m sorry for not posting sooner…I wanted to get past the negative phase and wait until I was more positive about outlook. 

15
Dec
11

Stay tuned…

Today is the day that I will receive my processor AND it will be turned ON.  Please say a prayer or send some positive thoughts my way as I embark on this new journey of “hearing” in my left ear.

 

More to come later…

05
Dec
11

Neptune…

FDA approved the newest cochlear implant by Advanced Bionics…it is called the Neptune. I called my audiologist to confirm that I will have a backup processor, and I asked if I could instead have a voucher to receive the Neptune.  And his answer is YES!!!  I am sooo excited to have this opportunity!

In other news, I officially have a working magnet in my head…we tested with refrigerator magnets, and lo and behold, one stuck!  I think that with the swelling I had before, nothing would stick…now that the swelling is down to a minimum, the magnet works.  Kind of freaked the kids out though… 🙂

30
Nov
11

More examples of what I hear/don’t hear…

As these last two weeks draw to a close (before my device is turned on), I am going to try and post more examples of my hearing (or rather lack of).

  • Anyone trying to talk to me when they are behind me or to the side of me will not get a response from me…I am not ignoring you or being snobby…I simply do not hear you.
  • Talking on the phone has become more of a chore lately.  80% of the time I can hear you on my good ear…but even that hearing has dropped (or my aid is just failing)…and the tinnitus is so loud now that it will literally drown out real sounds…very annoying.
  • I do not hear birds singing.
  • Going through a fast food drive thru…yikes!  Often I will ask my daughter or my son (if daughter isn’t with me) what they said through the speaker.  Oh and more embarrassing is that I will keep on ordering when they have already said “Just a moment please”.
  • Voice mail…I have to play it over and over to get it right.  Often I will ask my husband or one of the kids to listen to it with me.

For now that is all that comes to mind, but I will say that I do avoid situations that require social interaction.  I still go to my kids’ school/sports events but often find myself isolated from other parents.  At work and in personal life, I would rather have conversation via email than through face to face or on phone.  I ♥ texting & email because they require very little voice interaction.  I will try to update more examples later.  ☻

30
Nov
11

Long overdue update…

Surgery has come and gone…and I am recovering very nicely…with the exception of a little bit of vertigo, numb tongue and sore jaw. I saw the doctor today for follow up, and he said everything looks really good. The tape finally came off, and I can now take a shower without worrying about getting that part wet. No more rolling up wash cloths and holding it behind the ear while washing hair…that was not fun!

Anyhow, there were no complications from the surgery. My mom & I got to the hospital @ 9:30 am. The biggest issue I had was a horrible headache AND the doctor was running over 2 hours behind schedule. So…when I finally got wheeled into the OR @ 2:30 p.m., the pain from the headache went over the top, and I promptly vomited whatever I had in my stomach (which was VERY little due to the “no eating/drinking after midnight” rule). The anesthesiologist wanted to cancel, and the male nurse, Scott, exclaimed “No way! You have to do it!” My doctor looked at me and said “Let’s do it”…next thing I knew, I woke up and it was over. Too weird. No one asked me to count backwards or forwards…I don’t even recall being told I was going under. LOL. The headache was still there when I came to, so I got a couple of shots of magic…wish I could have taken some of that magic home! Anyway, I had to wear a pressure bandage for 24 hours…this wasn’t too bad. I have been sleeping elevated on my back on 2-3 pillows every night. Last night was first night that I successfully tried to sleep on non-implanted ear…and slept soooo well! My worst complaint so far has just been the dizziness…it’s like I am constantly on the Tilt-A-Whirl (not that bad…I can move my head/neck LOL)…but as each day passes, I am leaning more and more to my center than to my right or left. Also, I had/have a sore jaw…apparently, the doctor/surgeon messes with a muscle that is attached to the jaw hence it being so sore afterwards. Didn’t stop me from eating though…LOL. Another thing is that my hearing overall has dropped CONSIDERABLY. I really need the new aid for my right ear, but DARS is taking a really long time to get everything in order. It will happen when it happens…what’s disappointing about this is that I will have to use the hearing aid less once the implant/processor is activated. Oh well…it is what it is.

The most anticipated event of all will take place on December 15th when I get the processor and it is turned on. I will have mappings on the 16th and 22nd of December. Initial mappings are when they turn on a number of electrodes incrementally…in addition to changing certain settings to adapt to changing environments (good link explaining this: http://www.hearingpocket.com/mapping.shtml). Anyhow, I am struggling with the anticipation and trying sooo hard to keep my expectations low. I have heard so many “happy” outcomes that my expectations keep rising, and my hopes remain ever so high. I would love to have my whole family attend, but in keeping my expectations low, I am only going to have my mother there. My husband will be at home with the kids. This way, if I am disappointed, it won’t be such a sour event.

So that’s the update in a nutshell. I will update again on the day of activation…

12
Oct
11

Reference audiogram…cool!

Here is an audiogram that shows sounds that we hear at different frequencies/decibels…just thought I’d share so you can compare any audiogram with it…also look at mine for  comparison as well.

Thanks to Howard at HearingJourney.com for sharing this!  And just for reference sake, the above picture came from:  http://www.jtc.org/blog/chatterbox/chatterbox-topic-audiogram-familiar-sounds-frequency-spectrum-sounds .




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