Archive Page 2

10
Oct
11

Examples…

I am going to try to write down examples of what I can/can’t hear just to record pre-implant experiences.

 

  • I have trouble locating sounds.  For example, when I am waiting for the elevator, I can hear the ding…but never know which elevator it’s coming from…so if there are 3 on one side & 3 on the other, I almost always spin a 360 in order to find the one that will be opening soon.
  • Last Thursday night, my daughter & I went out with her volleyball team after the game.  I sat in between two dads, one of whom I have known for a while now.  I was watching 2 boys horse around (which was to the right of me), and then I turned my attention back to Mr. H to the left of me…only to realize he had been talking to me this WHOLE time.  I have no idea what he said…and being embarrassed/ashamed for not hearing him, I just played along…not sure if he noticed. :-/
  • We are having trees cut down in our backyard due to drought killing them.  I was sitting here working, when I heard a door slam…I went to find out which kid slammed a door, only to find out it was one of the trees falling to the ground.
  • More often than not, one of the kids will say something to me, and I will think it was the other kid and respond to that kid.  Or if they are fighting, and I think I heard the culprit right…turns out it was the other kid.  Hope they are not too confused.
  • I will often walk away and not realize that someone is still talking to me.
  • The timers on the oven…my kids will amplify that for me when the timer goes off. LOL.  Although lately they are starting to ignore it like I do…woops.
  • Songs on the radio…I can sometimes get the chorus only…the rest forget it.  And I only get the chorus maybe 20% of the time?  I usually have to ask my daughter.
  • More to come…
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06
Oct
11

Audiograms

Here are my audiograms:

 

Left ear:

 

Right ear:

Will come back and explain but for now, here’s an educational link on how to read audiograms.

04
Oct
11

Quiet…

Just thought I would update quickly since it’s been quiet around here (on the blog, that is)…not much is going on; however, I do have a meeting with DARS (Department of Assistive Rehabilitative Services – formerly known as Texas Rehahibilitative Services).  I am hoping to get some financial assistance in replacing the hearing aid for my right ear.  Right now, I am wearing a Siemens ITE (in-the-ear), and it does not deliver enough power for the amount of loss that I have.  So, I need to replace it with a powerful BTE (behind-the-ear).  These hearing aids run from $1200 up into neighborhood of $3000.  And…insurance will only cover $1000 which does put a dent into it, but with upcoming cochlear implant surgery, I need to save whatever I have for that out-of-pocket expense.  Once I get an idea of what I can afford, I will be making the appointment with the audiologist that will also be doing the CI mappings. 🙂  The good news is that he also files claims with my insurance company so that helps a lot.

So that is all for now.  Oh yeah, one last thought…I have been seeing the youtube video of the woman who shows such emotion when her implant was turned on…this video received such a high volume of hits, that it was on our local news last night.  However, she did get the Esteem middle ear implant…which is primarily for those with moderate to severe.  I did try to get in on the clinical trials, but was told that my loss was too severe. 😦  Also, I kind of question the fact that she heard her voice for the first time.  I am close to profoundly deaf in my left ear, and severely in my right…and I can still hear my voice somewhat with out aids.  Eh…it is what it is.

23
Sep
11

Ponderings of a HOH/Deaf Adult…

These are some things I wonder about:

  • Are HOH or deaf people the worst sneakers around?  Can we sneak behind people quietly?  Is it possible for us to be as quiet as a normal hearing person?  I have often wondered if my kids heard me sneaking into their rooms to do the fallen tooth/fairy $$ exchange or if they heard “Santa” putting the presents out late in the evening (or early in the morning).
  • This may be TMI, but do you hear other people in public restrooms? 😐
  • Can normal hearing people hear other people breathe?  Do HOH/Deaf people breathe “louder”?  I have been told once before that my breathing is loud, so I wonder if I do this just so I can hear myself breathe. 🙂
  • Do HOH/Deaf people sleep better than normal hearing people? Nice to turn off the ears at night. 🙂
  • Do we type louder just so we can hear ourselves type?
  • Is road noise louder for us than for normal hearing people?  I’ve always been sensitive to road noise…I will be first to breathe sigh of relief when we hit smooth, blacktop surface.  Same thing with the beach/ocean…I always feel like I talk louder…almost to yelling point.
  • Do HOH/Deaf people get louder when they are excited?  Much like little kids do?  I know I still do it.
That’s just a fraction of things I have wondered about…it will be interesting to compare this to when my “new” ear starts exceeding limits that will then have no boundaries. 🙂
22
Sep
11

Energizer bunny does not go on and on…

Gotta love it when my battery runs out, and I left them at home.  So now I sit in complete silence, anxious to get home…

Looking forward to having batteries that are rechargeable!  But for as long as I wear the hearing aid in the right ear, I will continue to buy batteries…which reminds me, I will be making a call to the audiologist sometime today to inquire about replacing this weak hearing aid.  My right ear needs a little more punch than this aid can deliver.  Crossing fingers that he can help me since he will be the one doing the CI mappings and also tweaking the hearing aid to complement the CI (so that it’s not the other way around).  Will update soon if I find out anything new…

21
Sep
11

One year later…

For the first entry, I thought I would just do a quick recap of my history.   I will probably come back and edit by adding links where applicable.

1972: 9 months of age, mom definitely noticed that I could not hear; after a series of tests, they determined that I did have moderate to severe hearing loss with 40% loss in right ear and 60% loss in left.  At the time, they said it was a sensori-neuro hearing loss due to severe ear infections.

1975:  Received BTE hearing aids for the first time; Would only wear one in the right ear consistently; Started talking for the first time after persistent prodding by Special Ed teacher, Miss St. John.  Wish I knew where she was today. 🙂

1976:  “Graduated” from Special Ed. preschool and started regular Kindergarten at age 5.

1989 – 1998: Attended college for both BS and MS degrees; received state assistance for tuition as well as hearing aid assistance; still wearing hearing aid only in right ear.

1995 – Present: Married and had 3 kids who are ages 7, 10 & 12 (going on 18); Work for an international law firm as a Senior Database Analyst.

September 2010: Made appointment with ENT and Audiology at Baylor College of Medicine; got the official word that my left ear was definitely a candidate for a cochlear implant.

September 2010 – May 2011:  Cold Feet.

May/June 2011:  Swallowed my pride and got back in the saddle to proceed; Discovered that the Advanced Bionic product I planned on choosing as my bionic ear was on voluntary RECALL (occurred in November 2010);  Had MRI with contrast (had bad reaction to the contrast), CT Scan and VEMP test done;  Found out that I have EVA – Enlarged Vestibular Aqueducts – not a direct cause of hearing loss but has been seen as being “related”…not much is known about this; so at this time,  all systems are a go for implant…just needed the FDA to finalize approval for implant.

Sept. 13, 2011: FDA approved the AB implant…all systems are a go; made my appointment with Audiology to choose the device.

Sept. 20, 2011: Appointment with Audiology, met with Dr. Ross Tonini, very nice man; chose color of processor and talked a bit about the surgery and had a Q&A session with him.

Sept. 21, 2011: Set surgery date…NOVEMBER 17, 2011…less than 2 months away!




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